Advocacy

The mission of the Kidney Advocacy Council is to protect and improve the quality of life for dialysis, transplant and kidney disease patients throughout Illinois through legislative change. 

 

If you have any questions, please email advocacy@nkfi.org or call 312-321-1500. 

Voice Your Support! Tax Credits for Organ Donor Leave (SB2563)

The National Kidney Foundation of Illinois supports legislation that provides tax credits for businesses that implement an organ donor leave policy.

A comprehensive organ donor leave policy for private sector employees would make a significant difference in the lives of thousands of Illinois residents who require organ transplants. To improve the lives of living organ donors, the National Kidney Foundation of Illinois supports SB2563, which states:

This bill provides for a credit against withholding taxes in an amount equal to 25% of the wages or salary paid by a private employer to an Illinois employee while the employee is on organ donation leave if the employer grants all of its employees the option of taking a paid leave of absence of at least 30 days for the purpose of serving as an organ donor or bone marrow donor. Provides that the credit may not exceed $20,833.33 for each employee who takes organ donation leave. Provides that such a leave of absence must be taken without loss of pay, vacation time, compensatory time, personal days, or sick time for at least the first 30 days of the leave of absence. Effective immediately.

You can read the full legislation HERE.

Contact your rep or senator to voice your support! Contact info is listed HERE

Questions? Comments? Concerns? Email us at advocacy@nkfi.org for more info.

Tax Credits for Organ Donor Leave (SB2563)

The National Kidney Foundation of Illinois supports legislation that provides tax credits for businesses that implement an organ donor leave policy.

A comprehensive organ donor leave policy for private sector employees would make a significant difference in the lives of thousands of Illinois residents who require organ transplants. To improve the lives of living organ donors, the National Kidney Foundation of Illinois supports SB2563, which states:

This bill provides for a credit against withholding taxes in an amount equal to 25% of the wages or salary paid by a private employer to an Illinois employee while the employee is on organ donation leave if the employer grants all of its employees the option of taking a paid leave of absence of at least 30 days for the purpose of serving as an organ donor or bone marrow donor. Provides that the credit may not exceed $20,833.33 for each employee who takes organ donation leave. Provides that such a leave of absence must be taken without loss of pay, vacation time, compensatory time, personal days, or sick time for at least the first 30 days of the leave of absence. Effective immediately.

You can read the full legislation HERE.

Contact your rep or senator to voice your support! Contact info is listed HERE

Questions? Comments? Concerns? Email us at advocacy@nkfi.org for more info.

Living Kidney Donors Day (SR1293)

More than 4,083 people in the state of Illinois are in need of a kidney transplant. Their names reside on a national list with a state wait of 5 to 7 years. More than 687 people received their much-needed transplant in 2016, while more than 1,238 new names were added to the list.

Living kidney donors (LKDs) offer a way to help remedy the problem. It’s time we recognize them as life-saving champions.

It is our hope that the State of Illinois will acknowledge its citizens who exemplify this “once-in-a-lifetime” achievement, by proclaiming the fourth Monday in June, as:

LIVING KIDNEY DONORS DAY

 

On this day, remarkable humanitarians will be honored for the role they played in saving and improving lives and for inspiring one of the most noble “pay-it-forward” acts known to mankind.

Read the full legislation HERE
 

Living Donor Protection Act (H.R. 1270)

Currently, living organ donors experience higher premiums or denial of insurance coverage based solely on their organ donor status. There is no federal protection to ensure that donors will not lose their jobs for taking time off for transplant surgery and recovery.

Why is this an issue? The lack of insurance protection, higher premiums and loss of job are barriers for someone who wants to donate an organ. With so many on the waiting list for an organ, it is imperative that we make this process as simple as we can.

The Living Donor Protection Act, introduced by Representatives Jerrold Nadler (D-NY) and Jaime Herrera Beutler (R-WA), will protect living organ donors and remove barriers to donation. Under this act, insurance companies are prohibited from denying or limiting life, disability and long-term care insurance to living donors, and from charging higher premiums.

Read more about this bill and sign a letter of support HERE

Support Early Diagnois of Kidney Disease (H.R. 3867)

For too long patients have asked why they were not diagnosed with chronic kidney disease (CKD) before learning they had kidney failure (ESRD). 

Early diagnosis and immediate nephrology referral are key steps in management because it enables predialysis education, allows implementation of preventive measures that delay or even halt progression of CKD to end stage renal disease, as well as decreases initial morbidity and mortality.

Representatives Markwayne Mullin (R-OK), George Holding (R-NC), Linda Sanchez (D-CA), and G.K. Butterfield (D-NC) have introduced innovative legislation (H.R. 3867) that seeks to demonstrate early detection of CKD, combined with effective and coordinated care which engages patients in the decision-making process, to not only improve clinical results but also lower healthcare spending.  At a time when the cost of healthcare is under scrutiny, legislation that will help save taxpayer costs and save lives is more timely than ever. 

This legislation will pilot a Medicare program that bundles payments to primary care and nephrologists for delivering high quality, appropriate CKD care that engages patients. NKF initiated this landmark legislation and believes it can help change the pattern of how CKD is identified and treated, improving the outcomes and quality of life of patients with CKD.

Read more about the bill and sign a letter of support HERE

Kidney Advocacy Council Members

Meet the members who are fighting to protect and improve the quality of life for dialysis, transplant and kidney disease patients. 

 

Shubha Ahya, MD

Divya Jain Arwindekar, DO

Jillian Dinga

Cybele Ghossein, MD

Kimberly Gosell

Linda Grande

Claudia Lora, MD

Della M. Major

Kim Pillischafske

Doug Penrod, RN

Tinh Phan, RN

Julio Zavala

 

If you have thoughts on how the KAC can fulfill our mission, please send inquiries to Advocacy@nkfi.org.

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Find your legislators' contact information here.