| CHAPTER 7: | The Internet for Health: Website Listings | |
| Topic 1 | General Kidney Websites |
| WEBSITE/ORGANIZATION | WEBSITE ADDRESS | DESCRIPTION |
|---|---|---|
| American Association of Kidney Patients | www.aakp.org | Information on chronic kidney disease including a glossary of terms and medical questions, a section for people predisposed to kidney disease, online publications including a newsletter, educational articles and a magazine. |
| American Diabetes Association | www.diabetes.org | Informs the user by breaking down the information into categories such as basic info, type 1, and type 2 diabetes. Also available is a community resource section obtained by entering your zip code. Online newsletter and healthcare professional information section is also provided. |
| American Journal of Kidney Diseases | www.ajkd.org | Offers an atlas of Renal Pathology and a AJKD quiz page. Previous journal articles can be browsed as well as current articles. An AJKD discussion forum is also an option. |
| American Kidney Fund (AKF) | www.akfinc.org | Information is provided on kidney disease facts, AKF programs, healthy lifestyles and the renal care professionals. Free recipes and a kidney IQ are other features provided. |
| Amgen/Renal Advances | www.epogen.com | Clinical information and practice solutions for nephrologists, anemia managers, and renal caregivers. Provides lifestyle and educational materials for patients, professional development programs, and materials for daily anemia management. |
| Atlas of Diseases of the Kidney, NKF cyberNephrology and ISN Informatics Commission | www.kidneyatlas.org | Online edition of atlas of diseases of the kidney is written mainly for the professional. Simple and advance searches are available. High resolution images. Powerpoint presentations. There are five volumes in all. |
| Baxter Healthcare Corporation | www.kidneydirections.com | Offers basic information about kidney disease, including symptoms and causes. A presentation of treatment choices, tips from healthcare professionals, and insights from kidney patients. A resource section which lists many other organizations that may offer additional help. |
| BeActive provided by Ortho Biotech Nephrology | www.beactive.com | Website deals exclusively with chronic kidney disease, its diagnosis, treatment and patient management. There are overviews on topics such as blood pressure control, Epoetin alfa therapy, cardiovascular disease and iron management. |
| Hartwell Communications supplies educational content through a grant from Watson Pharma, Inc. | www.ikidney.com | A website designed to bring the worldwide kidney disease community together. Provides nutritional compliance information and tips. The "marketplace" section of this website, identifies a wide range of books on kidney disease, the renal (kidney) diet and renal cookbooks. |
| Kidney Cancer Association | www.kidneycancerassociation.org | Site listings include: information services/drug trial information, research, kidney cancer symposium, public policy, dealing with the disease, a survivors' gallery, a patient's meeting calendar and membership info. |
| Krames by Staywell Mulitimedia USA Company | www.staywell.com | A family of companies offering comprehensive health information through publications, educational materials, training programs and web- based services. This information will enable healthcare providers, hospitals and the pharmaceutical industry to reach the consumer in a variety of ways. |
| Life Options Rehabilitation Program The Medical Educational Institute | www.lifeoptions.org | Divided into two sections, one for the renal professional and the other for patients, family members and friends. Both sections have educational materials that can be downloaded as well as links to other websites. |
| Merck | www.merck.com | Offers general health information for patients, Merck patient assistance program and services for U.S. healthcare professionals are available. Merck also publishes manuals of medical information which can be accessed online in its entirety. |
| National Institute of Diabetes & Digestive & Kidney Diseases | www.niddk.nih.gov | This large website is comprehensive in that it encompasses a variety of material. Some topics listed are national education programs for kidney disease and diabetes. Health information with Spanish language versions. Clinical research and research funding opportunities. |
| National Kidney Foundation | www.kidney.org | Topics vary on patient and family education, news and information, government relations, clinical practice guidelines, organ and tissue donation and "Kidney Cars Program". Some information is available in Spanish. |
| National Kidney Foundation of Illinois | www.nkfi.org | Comprehensive site for patients and professionals. Information on prevention including programs and screenings, patient education days and a list of upcoming events. Organ donation/ transplantation information and a Resource section. |
| Nephrology Channel by Health Communites.com | www.nephrologychannel.com | Board-certified physicians develop and monitor the content of this site. Includes information on conditions that involve the kidneys and related conditions. The News-Focus section lists recent developments in health care. |
| Nephron Information Center | www.nephron.com | Designed to include an extensive text search by subject (including journals). Topics include glomerulonephritis, diabetes and hypertension. There is a working diagram of how the kidney works. Professional resources are available as well as offering worksheets for the patient and a GFR calculator. |
| Nephroquest | www.renalworld.com | This site features renal resources from around the world. The sidebar lists an impressive list of links, in English, French, Spanish, Portuguese and German. |
| Nephroworld | www.nephroworld.com | For professionals, patients, organizations and companies related to nephrology. World-wide site (pick a country). Current updates and general nephrology news. |
| PKD Foundation, (Polycystic Kidney Disease) Foundation | www.pkdcure.org | Structured to answer questions, provide resources and allows opportunities to become involved in the foundation. Patient profiles are published. Medical news reported. Packets can be requested for further information. |
| Procrit.com provided by Ortho Biotech | www.procrit.com | Procrit is for the treatment of anemia in chronic kidney disease. This site offers a self-assessment to determine if you are anemic and how kidney disease affects your strength. |
| Renalnet, Kidney Information Clearinghouse | www.renalnet.org | Information clearinghouse which has information for the professional and the consumer. The data contained on this website is a collection of information submitted by Renalnet and other healthcare organizations. |
| Urology Channel | www.urologychannel.com | Offers a hospital and urologist locator listing. Conditions list where there is information on at least five conditions associated with kidneys and/or kidney disease. Urology forum for questions and answers. |