| CHAPTER 6: | Resource Directories | |
| Topic 16 | Resource Organizations |
The following is a partial list of resources that are specific to kidney disease and closely related topics. The National Kidney Foundation of Illinois does not assume responsibility for support, or otherwise endorse any information presented. These resources are not a substitute for medical advice or treatment. We recommend consulting with your doctor and/or healthcare professional.
| ORGANIZATION | ADDRESS AND PHONE | SERVICES AND GOALS |
|---|---|---|
| American Association of Kidney Patients (AAKP) | 3505 E. Frontage Road, #315 Tampa, FL 33607 (800) 749-2257 Fax (813) 636-8122 | Assists patients in learning more about their disease & becoming active in managing their treatment, improves patient understanding of and access to rehabilitation, provides a lifeline for patients, works together to improve public programs, reflects the views and concerns of patients |
| American Association of Retired Persons (AARP) | 8750 W. Bryn Mawr Ave., #600 Chicago, IL 60631 (773) 714-9800 Fax (773) 714-9927 | Informs members and the public on issues important to this age group, advocates on legislative, consumer and legal issues, promotes community services, membership is open to any person age 50 or above, offers a wide range of special products & services to members. |
| American Diabetes Association (ADA) | 30 N. Michigan Avenue, #2015 Chicago, IL 60602 (312) 346-1805 Fax (312) 346-5342 | Provide diabetes research, information and advocacy to prevent and cure diabetes and improve the lives of all people affected by diabetes, funds research, publishes scientific findings, provides information and other services to people with diabetes, their families, and healthcare professionals. |
| American Heart Association (AHA) | 208 S. LaSalle Street, Ste. #900 Chicago, IL 60604 (312) 346-4675 Fax (312) 346-8236 | Goal is to reduce coronary heart disease and strokes by 25% by year 2010, help patients to manage cardiovascular disease and to promote population wellness, discover and process science, develop and communicate infor- mation, reduce disability and death from cardiovascular diseases and strokes. |
| American Kidney Fund (AKF) | 6110 Executive Boulevard #1010 Rockville, MD 20852 (800) 638-8299 Fax (301) 881-0898 | Helps thousands of dialysis and transplant patients pay for treatment. Nation's leading non-governmental source of direct financial assistance for needy kidney patients, gives kidney patients hope and the expectation of an active, productive and long life. |
| American Liver Foundation (ALF) | 27 E. Monroe Street, Suite #700A Chicago, IL 60603 (312) 377-9030 Fax (312) 377-9035 | A national non-profit organization dedicated to the prevention, treatment and cure of hepatitis and other liver diseases through research & education, improving the quality of life through expansion of community support groups and increases organ donor awareness. |
| American Society of Transplantation (AST) | 17000 Commerce Parkway, #C Mt. Laurel, NJ 04054 (856) 439-9986 Fax (856) 439-9982 | Scientists involved in basic research that translates from bench to bedside to improve the care of transplant patients. |
| American Transplant Association (ATA) | 980 N. Michigan Ave., Suite 1402 Chicago, IL 60611 (800) 494-4527 Fax (800) 494-4527 | Reports on developments in transplantation, transplant medications, organ and tissue donation, financing transplantation, transplant-related social issues, governmental initiatives in transplantation and personal transplant experiences. |
| Baxter Healthcare Corporation | One Baxter Parkway Deerfield, IL 60015-4633 (847) 948-3948 Fax (847) 948-4770 | Offers "Kidney Directions" an educational resource providing information about kidney disease, causes, symptoms and treatment choices. The renal division provides renal dialysis products and services to support people with kidney failure. Provides access to care for children, the uninsured, and the elderly, |
| Centers for Disease Control and Prevention (CDC) | 1600 Clifton Road Atlanta, GA 30333 (404) 639-3311 | Protecting the health and safety of people - at home and abroad, provides credible information to enhance health decisions, promotes health through strong partnerships. Developing and applying disease prevention & control, health and education activities designed to improve the health of people. |
| Fresenius Medical Care | One Westbrook Corporate Center Suite 1000 Westchester, IL 60154 | Provides dialysis treatment to 112,200+ patients around the world. Provides hemodialysis machines, dialyzers and related disposable items. |
| Gift of Hope Organ & Tissue Donor Network | 660 N. Industrial Drive Elmhurst, IL 60126 (630) 758-2600 Fax (630) 758-2601 | Promotes organ donation with family members of potential donors, evaluates potential donors for medical suitability, coordinates the organ procurement process, educates health care professionals about the donation process, offers support to families of organ and tissue donors. |
| Illinois Comprehensive Health Insurance Plan (ICHIP) | 400 West Monroe Street, #202 Springfield, IL 62704-1823 (866) 851-2751 (800) 545-2455 | State insurance program for people who are unable to obtain private health insurances. Provides coverage to nearly 34,000 Illinois residents from every county in the state. |
| Illinois Department of Revenue (Circuit Breaker) | James R. Thompson Center 100 W. Randolph Chicago, IL 60601 (312) 814-5232 | Provides grants to senior citizens and disabled adults. Administers the Pharmaceutical Assistance Program that provides prescription medicines for senior disabled adults. Enrolls individuals in the new SeniorCare program that provides expanded prescription coverage to eligible seniors. |
| Illinois Department of Revenue (Pharmaceutical Assistance) | P. O. Box 19003 Springfield, IL 62794 (800) 356-6302 | Reduces drug costs for the elderly. Increases income levels for eligibility and reduces co-payment requirements. Helps pay for approved prescription medication for the treatment of heart, blood pressure, arthritis, and diabetes medicines. Helps eligible seniors and disabled persons. |
| Illinois Department on Aging | Senior Helpline 421 E. Capitol Avenue, #100 Springfield, IL 62701-1789 (800) 252-8966 | Helps older people live independently in their own homes and communities. Strives to deliver the most effective and efficient services possible to meet the needs of Illinois seniors. Serves families and teaches younger people about the realities of aging. Works with Area Agencies on Aging. |
| Illinois Diabetes Prevention and Control Program | 535 West Jefferson Springfield, IL 62702 (217) 782-2166 Fax (217) 785-5247 | Strives to lessen the burden of diabetes in Illinois communities through prevention and intervention activities. Increases adherence to the diabetes standards of clinical practice and educations. Improves access to quality care, diabetes support and education. Provides referral to individuals with diabetes. |
| Kidney Cancer Association (KCA) | 1234 Sherman Avenue Evanston, IL 60202 (847) 332-1051 or (800) 850-9132 | Encourages both private and public sector institutions to increase research on kidney cancer. Helps researchers in academic medical centers, government and industry with money and information. Provides financial grants for basic research. Members of the Association work to raise funds. |
| Kidney Transplant/Dialysis Association | P. O. Box 51362 GMF Boston, MA 02205-1362 (617) 641-4000 | Provides financial aid to needy kidney patients and donors. Awards scholarships to kidney patients or members of their immediate families. Provides a variety of social activities for patients and their families. Publishes a newsletter which informs members about medical advances. |
| Life Options Rehabilitation Advisory Council (LORAC) | 414 D'Onofrio Drive, Suite #200 Madison, WI 53719 (800) 468-7777 | Offers technical support. Develops high quality educational materials for kidney failure patients and renal professionals. Helps people with chronic diseases learn to manage and improve their health. |
| LifeSource-Upper Midwest Organ Procurement Organization | 2550 University Avenue West Suite #315 South St. Paul, MN 55114-1904 (651) 603-7800 or (888) 5-Donate | Manages all aspects of organ donation. Coordinates clinical activities. Promotes awareness among health care professionals about the need for organ donation. Coordinators participate in frequent education seminars with hospitals to assist them in identifying potential donors. |
| Lupus Foundation of America, Inc. (LFA) | 1300 Piccard Drive, Suite #200 Rockville, MD 20850-4303 (301) 670-9292 Fax (301) 670-9486 | Facilitates early detection of undiagnosed cases of lupus. Discovers the cause and cure for lupus. Alleviates the suffering of people afflicted with with lupus. Enhances community-based resources that provide urgently needed programs and services affected by lupus. |
| Medical Education Institute, Inc. (MEI) | 414 D'Onofrio Drive, Suite #200 Madison, WI 53719-2803 (608) 833-8033 Fax (608) 833-8366 | Conducts focus groups, phone interviews, and surveys to gather data, Collects important patient healthcare and health assessment data. Works hand-in-hand to identify gaps in patient knowledge and patient attitudes. Helps people with chronic kidney diseases learn to improve their health. |
| Mid-America Transplant Services | P.O. Box 190 Galatia, IL 62935 (618) 268-6025 Fax (618) 268-6625 | Coordinates all aspects of the organ recovery process which includes working with the donor families, the placement of organs for transplant, the recovery of organs from the operating room and the transportation of the organs to the recipients. Provides education to hospital staff and the public on the importance of discussing the decision to donate with your family. |
| National Institutes of Health (NIH) | 9000 Rockville Pike Bethesda, MD 20892 (301) 496-4000 | Develops, maintains, and renews scientific human and physical resources that will assure the nation's capability to prevent diseases. Expands the knowledge base in medical and associated sciences in order to enhance the nation's economic well-being. Fosters fundamental creative discoveries. |
| National Kidney Foundation of Illinois, Inc. (NKFI) | 215 W. Illinois Street, Suite 1C Chicago, IL 60610 (312) 321-1500 Fax (312) 321-1505 | Provides prevention programs, and educational materials for patients, transplant recipients and communities. Funds medical research. Strives to increase the availability of all organs for transplantation through school, corporate and community organ donor awareness programs. |
| National Kidney Foundation, Inc. (NKF) | 30 East 33rd Street New York, NY 10061 (800) 622-9010 Fax (212) 779-0068 | Supports research and research training. Provides continuing education of health care professionals. Expands patient services and community resources, educates the public, shapes health policy and does fundraising. Offers annual campaigns designed to inform consumers about kidney disease. Has 51 affiliates throughout the U.S. |
| National Minority Organ and Tissue Transplant Education Program (MOTTEP) | 4522 Indianapolis Blvd., Suite #10 East Chicago, IN 46312 (219) 397-4335 or (219) 985-9504 Fax (219) 980-8566 | Educates minority communities on facts about organ and tissue transplantation. Increases minority participation in organ and tissue transplant endeavors including signing organ donor cards. Encourages and increases family discussions related to organ and tissue donation. |
| Organ Transplant Support (OTS) | P.O. Box 471 Naperville, Il 60566 (630-527-8640) Fax (630-527-8682) | Provides educational, emotional and financial support to pre/post transplant patients. Donor awareness is a major project in the effort to eliminate the organ transplant waiting list. Grants are provided for medicine, transportation, lodging and other needs of pre and post transplant patients. |
| Patient and Family Council (PFC) National Kidney Foundation, Inc. (NKF) | 30 East 33rd Street New York, NY 10061 (800) 622-9010 Fax (212-779-0068) | Strives to educate and empowers patients and families to make informed decisions about quality of care. Provides a stronger and more unified voice on local & national legislative issues. Provides members with information about local and national programs and services within the NKF. |
| Polycystic Kidney Disease (PKD) | P. O. Box 2744 Detroit, MI 48123 (313) 273-7577 Fax (313) 273-9426 | Promotes research to find a cure for PKD. Strives to improve the care and treatment of people with PKD. Source of PKD information and offers a forum for patient education. Strives to bridge the gap between ignorance and knowledge about PKD. |
| Social Security Administration | 806 North Jefferson Springfield, MO 65802 (800) 772-1213 Fax (417) 866-6571 | Provides retirement benefits, disability benefits and supplemental security income. Employment support for people with disabilities. Provides social security number and card. Medicaid/Medicare information. Helps to prevent fraud, waste and abuse in social security programs and operations benefit payments. |
| The Renal Network, Inc. | 911 E. 86th Street, Suite #202 Indianapolis, IN 46240 (317) 257-8265 Fax (317) 257-8291 | Provides an interactive website. A wide range of recourses and materials. Provides treatment options and information on exercise and living with renal disease. Provides a number of renal links. |
| The United Way of Metropolitan Chicago | 560 West Lake Street Chicago, IL 60661 (312) 876-1808 Fax (312) 906-2316 | Strives to improve lives by mobilizing the caring power of communities. Helps to improve the quality of life for children, families and individuals in need. |
| Transplant Recipients International Organization, Inc. (TRIO) | P. O. Box 7633 Arlington, VA 22207-7633 (703) 920-8746 or (703) 538-4360 | Provides educational materials regarding transplantation and donor awareness. Provides information about financial and insurance issues relevant to the transplantation process. Sponsors educational scholarships for transplant candidates. |
| U.S. Department of Health and Human Services (DHHS) | 550 West Jackson Blvd. Chicago, IL 60661 (312) 353-5863 Fax (312) 596-4187 | Provides financial assistance & services for low-income families. Strives to prevent outbreaks of infectious diseases, promotes food and drug safety and improving maternal and infant health. Provides substance abuse treatment and prevention, and services for older Americans including home-delivered meals. |
| United Network for Organ Sharing (UNOS) | P. O. Box 2484 Richmond, VA 23218 (888) 894-6361 or (804) 782-4800 | Matches donors to recipients and coordinates the organ-sharing process. Maintains the databases that contain all clinical transplant data for every transplant event that occurs in the U.S. Monitors every organ match. Raises public awareness about the importance of organ donation. |